Why we use the term “consumer”

What we mean by: Consumer Involvement

Consumer involvement is when adolescents and young adults with cerebral palsy and their families partner with researchers in all aspects of research.

We believe that our research is better with consumer involvement and our findings better meet the needs of people with cerebral palsy and their families.

Consumers can be involved as consultants, advisors, collaborators and/or co-producers of research by taking part in reference groups, advisory panels, and as researchers.

CP-Achieve aims to:

  • Involve consumers from the beginning to decide what to research; plan the design and methods; carry out the research; analyse findings; and ensure that the findings reach and inform the people who need to know in the best ways
  • Find creative, appealing and effective ways of involving adolescents, young adults and families from across Australia including those who have significant physical disability, sensory impairments, communication difficulties and/or intellectual disability

CP-Achieve aims to involve adolescents and young adults, aged 10 to 30 years, and families of young people in all our activities. We believe that this consumer involvement improves every aspect of our research, making it stronger, more relevant to young people with cerebral palsy and their families, and more ethical. This means our research will make an important difference to the lives of young people with cerebral palsy.

Consumers involved in CP-Achieve research IS NOT THE SAME at being a participant in research.

You have probably been invited to respond to surveys, take part in an interview or try out and test an intervention. This is being a research participant.