Consumer Advisory Groups
Consumer Advisory Groups
What we mean by: Consumer Involvement
Consumer involvement is when adolescents and young adults with cerebral palsy and their families partner with researchers in all aspects of research.
We believe that our research is better with consumer involvement and our findings better meet the needs of people with cerebral palsy and their families.
Consumers can be involved as consultants, advisors, collaborators and/or co-producers of research by taking part in reference groups, advisory panels, and as researchers.
CP-Achieve aims to:
- Involve consumers from the beginning to decide what to research; plan the design and methods; carry out the research; analyse findings; and ensure that the findings reach and inform the people who need to know in the best ways
- Find creative, appealing and effective ways of involving adolescents, young adults and families from across Australia including those who have significant physical disability, sensory impairments, communication difficulties and/or intellectual disability
What we mean by: Developing a Specialist Workforce
We aim to support health care and other workers to develop specialist skills and knowledge for working with adolescents and adults with cerebral palsy (CP).
Why is it important?
For people with CP to receive the best health care throughout their lives – not just in childhood – the healthcare workforce needs to be expanded and include health and disability workforce with special skills working with adolescents and adults.
What we will do?
- Provide education to support those working with people with cerebral palsy
- Carefully share our new knowledge to inform clinical practice
What we mean by: Health Economics
We will work out the costs of all our programs, whether they are cost effective, whether they are worth it to people with cerebral palsy and their families, and how we can use this information to influence clinical practice, health services and health and social policy.
What we mean by: Promoting Participation
We define participation as being involved in life situations such as activities that occur in home, school, work, recreation, community and health care settings.
Why is participation important?
Active participation builds fitness, fun, social and community links, and self-management of health needs.
Participation builds confidence and preferences for a healthy lifestyle that will help physical and mental health and satisfaction with life.
What will CP Achieve do to promote participation?
- Understand the impact of physical and mental health on participation
- Develop interventions that will support adolescents and young adults with CP to participate in Australian health care and community settings
- Learn how to create environments which support participation - that is, environments that are accessible, acceptable and accommodating