Parent Advisory Group
CP-Achieve wants to make sure that we carry out research which will make an important impact on the lives of young people with cerebral palsy and their families.
CP Achieve needs your expertise!
Does this describe you?
- A parent or family member who has opinions to share about this topic
- Interested in influencing research in the field of cerebral palsy
- Enjoys working in an engaging and supportive team
- Willing to give 2 to 3 paid hours per month
We invite YOU to join one of CP-Achieve’s teams. Keep reading to hear about CP-Achieve and positions available for parents and family members of adolescents and young adults with cerebral palsy. It is your knowledge about being a parent that is important to us. You do not need to know anything about research.
CP-Achieve stands for Australian Centre for Health Independence, Economic Participation and Value Enhanced Care for adolescents and young adults with cerebral palsy (CP). The focus of CP-Achieve is research with and about adolescents and young adults with cerebral palsy aged 10 to 30 – a life stage when young people are gaining their independence and figuring out who they are and want to become.
The vision of CP-Achieve is for people with cerebral palsy in Australia to receive the best health care throughout their lives and participate in, and contribute to, supportive communities.
Our projects
In each project you will work together with research teams to influence research and how to use the findings to help people with cerebral palsy and their families
Benefits to you
Mostly the research team and the quality of the research will benefit by your involvement. People who are research partners tell us that they benefit by:
- Learning more about cerebral palsy and treatments
- Helping others
- Contributing to important research
- Getting to know researchers, therapists and other people
- Learning more about research
- Learning new information and developing new skills
Our responsibilities to you
- Communicate clearly with you about roles and responsibilities, and research activities
- Build a team of trust and openness where members feel confident and safe to have a say and express their views – where we also have a laugh and enjoy our work together.
- Be flexible about involvement – making it as easy as we can for you to contribute to the research
- Support you in your role – to prepare you well for taking on your role with us, with education and a dedicated person to check in about how you are going
- We will provide a written reference for your résumé
- Pay you for your involvement - $40 per meeting plus preparation (using vouchers)
What happens next? Read about our projects, the information is below.
CLICK HERE – to leave your contact details if you are interested in speaking with one of the team members or in expressing an interest in joining a team.
We will be holding an information session using Zoom with more information before you commit to being involved on:
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CONSUMER EVALUATION RESEARCH TEAM
CP-Achieve aims to work with consumers, that is, people with cerebral palsy and their families, in all our activities. We believe consumer involvement will result in stronger research, which will better meet the needs of people with cerebral palsy and their families.
The consumer evaluation research team will be working out how well CP-Achieve is involving people with cerebral palsy and their families and how this involvement impacts on consumers, researchers and the research. The consumer evaluation research team will also be seeing what strategies work well for involving consumers and how we can do better. We plan for this work to make a difference for consumers and researchers locally and internationally.
We would like parents to join this team to guide the research in a way that will make an important difference in cerebral palsy research. Read more about the consumer evaluation research team
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TRANSTION TO ADULTHOOD RESEARCH TEAM
This research team wants to understand the experiences, needs, and thoughts of young people with cerebral palsy, as they transition into and through young adulthood. We are interested in major life areas, such as accommodation, education, employment, healthcare, and relationships. We also plan to gain greater understanding around what helps young adults with cerebral palsy best participate in the life areas that are most important to them. Read more about the transition to adulthood research team
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PARENT ADVISORY GROUP
This advisory group of around 10 parents and family members will lend their lived experience of cerebral palsy to all of CP-Achieve. The advisory group can provide advice about consumer perspectives to new research teams to make sure that these teams integrate this knowledge into their research at the very beginning of the work. The advisory group will also meet with other research teams and working groups to provide informed parent perspectives to ongoing research. Read more about the Parent Advisory Group:
Consumer Involvement
Our partners
